Patient & Community Advisory Group
Grounded in Personal Experience. Focused on Better Conversations and Care.
The Rowan Foundation’s Patient & Community Advisory Group (PCAG) was created to help ensure that patient and family perspectives remain at the center of women’s health and clotting education.
While the PCAG was formally introduced in March 2026, the Rowan Foundation’s work has long been informed by patient stories, lived experience, and the belief that women deserve a stronger voice in conversations about their health.
Since our founding in 2013, patient and family perspectives have helped shape the Rowan Foundation’s educational priorities, storytelling initiatives, awareness campaigns, and women’s health programming. Our namesake, Alexandra Rowan, continues to inspire our commitment to listening closely, asking better questions, and creating resources that reflect the real-world experiences of women and families affected by blood clots and clotting disorders.
The PCAG expands and formalizes that long-standing commitment by creating an ongoing structure for patient and community insight to help guide Rowan Foundation initiatives across women’s health and clotting education.
Why PCAG Matters
Women often make important health decisions at moments when clotting risk may be relevant, including contraception, pregnancy and childbirth, and some forms of hormone therapy used during menopause care. Yet many women still report feeling underinformed, dismissed, or unsure how to raise questions about clotting risk with their healthcare providers.
Many women are handed complex healthcare decisions without clear, practical information that reflects the realities of their daily lives, concerns, questions, and experiences.
The PCAG helps the Rowan Foundation listen more deeply to these experiences and translate them into practical education, stronger communication tools, and more informed conversations between women and their healthcare teams.
This work reflects a central belief of the Rowan Foundation: better education begins with listening.
Our Approach
The PCAG is designed to be an active, working part of the Rowan Foundation’s educational and awareness efforts.
Member perspectives will help inform patient-facing resources, storytelling initiatives, educational tools, awareness programming, and future projects focused on helping bridge communication gaps between patients and healthcare providers.
By grounding our work in both lived experience and clinical insight, the PCAG helps ensure that Rowan Foundation resources are practical, respectful, thoughtful, and responsive to the realities women face.
Our goal is not simply to create more information, but to create information that is clearer, more practical, more compassionate, and more responsive to the questions women are actually asking.
Meet the Founding Members
Our founding PCAG members bring a range of perspectives, including patient experience, family experience, advocacy, healthcare, and community education. Together, they are helping the Rowan Foundation strengthen its work across women’s health and clotting awareness while helping ensure that patient voice remains an important part of the conversation.
Select or click on each PCAG member’s name below to learn more about their experience and perspective.
Founding PCAG Members With Personal Experience With Blood Clots
Founding PCAG Members Who Are Family Members of Women Lost to Blood Clots
PCAG Advisors
Commitment to Community & Patient Voice
The Rowan Foundation has long recognized that meaningful education begins with listening to the women and families affected by blood clots and clotting disorders.
From educational storytelling and awareness campaigns to women’s health programming and community engagement, lived experience has helped shape both the direction and tone of our work since the organization’s founding.
Through PCAG, the Foundation is deepening that commitment by creating a more formal way to gather personal experience, community insight, and patient perspectives to help guide future education and awareness efforts.
As interest in women’s health and clotting awareness continues to grow, the Rowan Foundation remains committed to approaching this work with depth, continuity, and care.
The PCAG is one part of the Rowan Foundation’s broader commitment to advancing women’s health and clotting education across life stages.
Through patient stories, expert-informed resources, educational tools, and community engagement, we are working to help women recognize risk, ask informed questions, and participate more fully in decisions about their health.
Get Involved
As PCAG continues to evolve, the Rowan Foundation looks forward to expanding the group over time and welcoming additional voices with personal, family, or community experience related to blood clots and clotting disorders. To express interest in getting involved with PCAG or other Rowan Foundation efforts, contact us at [email protected]
